It is an absolutely gorgeous Memorial
Day weekend, traditional beginning of summer, throw open the windows,
baseball on the radio, lawnmower humming, hamburgers on the grill
kind of day, and these sunny skies with puffy clouds have brought a
wistful sort of restlessness in my spirit.
I've been contemplating sharing what's happening in my life, yet
finding it impossible to form the words. Impossible really, to even
wrap my head around it, let alone find words to tell you.
I could gloss over the details and tell you how much I am learning
through the events of this season, because I am. I am learning. So.
Much. I want to rush through these lessons and get to the
victorious end and report these things from the other side of it.
Standing on the podium, diploma in hand.
But I'm not there yet. I am in the
messy middle.
I've turned a page in the textbook and
suddenly I understand what the lessons are. Two + Two = Four but that
root? Wait, what was that root number again? I sigh as my pencil
begins to dull. Or maybe it's my thinking, as it were, because Lyme
does affect the sharpness of my thinking.
Chronic Lyme. There, I said it. I have
just been diagnosed with Chronic Lyme. Those words have been rolling
around in my head, stuck on my tongue, for the past few weeks. It
explains so very much.
It is a relief really, to know the root
cause of the myriad of illnesses and symptoms I've been suffering for
so long; the bone weary exhaustion, the arthritic deep muscle and
bone pain, the sleepless nights, fluy aches, the pops and fizzles
and twitches and spasms in my muscles, anxiety and depression, the
dull thinking and memory lapses and missing words. The crazy hyper
sensitivities and so many more inexplicable debilitating symptoms.
But then again, it's kind of
devastating.
Last week I told you about my awesome
new studio, the permanent one in the same building where I had
set up a temporary unit for a few weeks to participate in the Racine
studio tour and teach my latest workshop. It's a fantastic
space in a building that houses over 50 other artist studios. A
community of artists like I have been dreaming of working in for
several years. I am finally here and I know it is where I am supposed
to be right now. But what I didn't tell you was the full of the why I chose to make
that move so soon after moving into my huge studio loft
apartment in Racine.
Mold. Unfathomably, I moved into
another home that has some sort of issue with mold. And I became sick
again. Really really sick. It was hard at first, to acknowledge it,
because what the actual f#*k?? But the fact
is, that I have not stayed inside the apartment for more than an hour
or two since the beginning of April, when I finally had to
acknowledge that my symptoms were mounting and the management was not
going to fix it.
The doctor noted swollen lymph glands,
red irritated respiratory track, sinusitis, hives, and it was hard to
overlook the complete loss of my voice, but the suspicion of Lyme was
what really threw me. What could this experience possibly have to do
with that tick-borne disease?
Quite a lot, as it turns out. Lyme
disease gone undiagnosed for decades- misdiagnosed as Lupus,
Fibromyalgia, Thyroiditis, Tachardia Arythmias, and a host of other
seemingly unrelated illnesses, wreaked havoc on my immune system,
causing a hyper-sensitivity to issues like exposure to mold. Compound
that with genetic markers, discovered through recent labs, that
prove me to be among the 25% of the population whose bodies cannot
clear the biotoxins created by mold exposure, lyme, and other toxins
and you've got a formula for one very sick puppy. This exposure has left me slammed with a flare of debilitating symptoms I can't begin to describe.
I have been at a complete loss of words
over it, and so have avoided mentioning it at all. But it is
hard to put on a happy face and not let on that I am in the midst of
this crisis. It isn't unusual these days to get concerned email
wondering why I haven't yet managed to fulfill some responsibility
that I have committed to. All I can say is that it is hard. And I am
genuinely sorry. And I am doing the best that I can to keep up. And
so much has gone by the wayside.
Yesterday I moved out of the apartment
and stored the bulk of my things in my new studio. My husband and I
are still working through our issues, not yet ready to reconcile, and
though I have a place to stay, I am without my own home until I can
find a clean, safe place to move.
I have begun the first steps necessary
to help my body clear the biotoxins that it is unable to release. It
will be a very long and painful course to try to stabilize enough to
even begin to look at treatments for Lyme, and after decades of this
disease doing what it will in my body, there is no guarantee that I
will get well. The only guarantee is that not addressing it will mean
my health continues to decline.
Author and blogger, Glennon Doyle
Melton described coming to terms with the chronic nature of her own
battle with Lyme disease as a dreamlike picture of God knitting her
life together in a sort of wild and beautiful swirly afghan. For
myself, the opposite picture holds true, as I get impressions of a
“long slow unraveling”.
Tear down this temple and I will rebuild it, Jesus said. He knew that
the old systems had to be completely let go before the new could be
established. I don't know whether I will be cured of Chronic Lyme
disease, the doctor guarantees it wil get worse before I get
better. But one thing I can say is this crisis is being used to
challenge the old systems and belief patterns inside me. Each one
being pulled away to free me. In a long slow unraveling.











